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How am I doing? Not a medical update a personal update. August 3

Bijou
Bijou
Mother of Two, product designer, tennis player, photographer and lover ...of lif
User is currently offline
Aug 20 HOW & WHAT AM I DOING 0 Comments

That's a question many asking me that know what is going on. Quite frankly, I am doing great. I have a positive attitude, I excersize, play tennis every day. I am researcing lotsof information about this condition, and due to this website, I am receiving lots of information by emails from people I know, and by postings and by research I am being led to.  So I am doing well.

My spleen is uncomfortable, and tender and big, and my energy runs out at about 3 or 4 (unless my brother and sister are here then) I go above and beyond because it is/was non stop fun, and fun is really important now. but...so is rest.

I do have more tests tomorrow (August 4) and then the big appointment with the specialist on the 8th. I look forward to knowing where things stand, and am ever so hopeful all is in the early stage where I may be abe to control where it all goes. Well, no matter what stage it is at, I will use many of my wiley tactics and lots of information to chart the course going forward.

What has shifted is I know I want to simplify my life tremendously, get rid of "things" and have "experiences" and spend time with people I love. That is where I'm at.

Love and hope,

Bijou

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